疾病叙事中的病友叙事共同体构建与情感支持研究

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[中图分类号]R-05 [文献标志码]A [文章编号]1001-8565（2025）06-0687-08

DOI：10.12026/j.issn.1001-8565.2025.06.02

Research on the construction of a patient narrative community and emotional support in disease narratives

ZENG Fanping

（SchoolofHealth，FujianMedical University，Fuzhou35Ol22，China）

Abstract：Taking the Z Cancer Patient Organization in Beijing as an example，by analyzing the disease naratives of cancer patients，this paper elucidated the construction of a patient narative community and the operation mechanism of patient emotional support in the patient organization. This study found that firstly，under the advocacy of the group’s anti-cancer philosophy in the patient organization，the shared identity of suffering from cancer and the frequency of participation in organizational activities were the sources of cancer patients becoming cancer friends，establishing narrative connections，and forming emotional relationships.Secondly，the collctive narrative activities of“talk therapy”were important mechanisms for constructing a patient narrative community and initiating mutual assistance practices among patients.Thirdly，emotional support was the main practice form of mutual asistance among patients，as well as the alignment of narratives and emotions helped to strengthen the patient narative community and expand the social solidarity function of the patient organization，thereby forming mutual emotional support between patients and the patient organization.Therefore，the narrtive connections and the advocacy of narative community among patients are crucial，which not only benefits patients in enhancing their social and psychologicalsupport，re-adapting to social life，and increasing holistic healing，butalso helps to create a better cancer narrative ecology for the whole society，motivating patient organizations to continuously assist cancer patients in overcoming living dilemmas and improving their quality of life.

Keywords： patient organization; disease narrative； narrative community; narrative connection; emotional support

0 引言

对于癌症患者来说，他们承受着威胁生命的死亡风险，多数患者即使在治疗结束后也依然难以恢复到正常的生活状态，面临不同程度的生存困境。（剩余12863字）