对儿童1型糖尿病特异性自我报告结局量表的测量属性评价：基于COSMIN指南

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【关键词】糖尿病，1型；儿童；青少年；自我报告；测量属性；共识选择健康测量工具的标准方法【中图分类号】R587.1 R729【文献标识码】A DOI：10.12114/j.issn.1007-9572.2023.0560

【Abstract】BackgroundType1diabetes melitus inchildren is progressivelyyounger，andthere isalackof quality standardizedstudiesonspecificself-reportedoutcomesscalesforpediatricandadolescentpatients.ObjectiveToevaluatethe measurementspropertiesofchildren's type1diabetes-specificself-reportedoutcomesreportsandthemethodologicalquality ofrelatedresearchesbasedontheConsensus-based Standards fortheSelectionof Health MeasurementInstruments （COSMIN）. MethodsCNKI，WanfangData，VIP，Medine，WebofSiencendEmbaseweresearchedforthestudiesonthedevelopment ofchildren'stypediabetes-specificself-reportedoutcomesscalesandvalidationofthemeasurementspropertiesfromiception toMarch，2O2.Twoveigatososcdckeddeactedteatadescedadaatedtheicddale andresearchesbyCOSMINlist，tofinallyformtherecommendations.ResultsAtotalof24developmentorvalidationstudies relatedto11children's type1diabetes-specificself-reportedoutcomesscaleswereincluded.PediatricQualityofLifeInvntory

Diabetes Module （PedsQLTM3.2-DM），MIND Youth Questionnaire （MY-Q），Diabetes Qualityof Lifefor Youths （DQOL-Y）， Problem Areas inDiabetes-Teen Version （PAID-Tens），DISABKIDS Diabetes-Specific Module （DSM-10），FinDiabQualit of-lifeQuestionnaire （FDQL）andtheQualityof Life SurveyforChildrenand Adolescents with Diabetesin Chongqingareall recommended as Grade B， while PedsQI TM3.0 -DM，Problem Areas in Diabetes Survey-Pediatric Version （PAID-Peds）， Type 1 Diabetesand Life （T1DAL）and ADDQoL-Ten areallrecommendedas GradeC.Atthe same time，the measurement properties of thechildren's type1diabetesspecificself-reportedoutcomesscaleswereinsuficientandthereportswerenotcomprehensive. ConclusionThemethodological qualityand measurement propertiesoftheratingsofchildren's type1diabetes-specific selfreportedoutcomesscalesathomeandabroadare mostlygradesBandC，whichneedtobefurtherimproved，andsomepotential scales deserve further study and application.

【Key words】Diabetes mellitus，type 1; Child; Adolescent; Self report; Measurement properties; Consensus-based Standards for the Selection of Health Measurement Instruments

1型糖尿病（T1DM）是我国儿童青少年最常见的糖尿病类型，以高血糖为主要特征，T1DM导致的代谢紊乱对儿童青少年的生长发育有严重不良影响。（剩余15914字）